在臉書上看到一位朋友的發文, 她說去年11月時去韓國找她的女兒玩, 那時她發生腰痛, 回到台灣以後, 雙腳越來越容易失去平衡在家跌倒, 本來她以為是椎間盤突出,去台大醫院急診後,醫生告訴她,她得的是罕見疾病AQP4引起的NMOSD泛視神經脊隨炎
從去年11月中住院復健到今年4月才出院家, 住院第一個月,雙腳無力 只能坐輪椅做復健, 第二個月, 可以用助行器慢慢地走,第三個月可以用四腳拐走路,第四個月用單拐, 4月出院至今, 每天安排門診復健,現在平均一天可以走2000~3000步,沒辦法走太遠, 外出都需要有人陪,更體會到平安健康就是福. 醫生說童常發病前有打疫苗才會得這個病,但她沒打疫苗, 經過一連串的檢查後, 醫生說是她的免疫系統太強去攻擊她的神經,早成脊隨3節發炎(L5-S1)
人生真的很無常,誰都沒辦法預料下一秒會發生甚麼事情,或許我們無法完全阻止意外發生, 但我們可以選擇抱持著小小的希望之光, 去迎接下一次的光明.好好珍惜目前我們所擁有的
共勉之~~
I saw a post on Facebook from a friend who said that last November, she went to South Korea to visit her daughter. At that time, she experienced back pain. After returning to Taiwan, she found it increasingly difficult to balance and fall at home. Initially, she thought it was a herniated disc, but after going to the emergency room at National Taiwan University Hospital, the doctor told her she had a rare disease, AQP4-induced NMOSD (neurospondylodis Optic Disorder).
She was hospitalized for rehabilitation from mid-November last year until April this year. During the first month in the hospital, her legs were too weak, and she could only use a wheelchair for rehabilitation. In the second month, she could walk slowly with a walker. In the third month, she could walk with four crutches, and in the fourth month, she used a single crutch. Since her discharge in April, she has been scheduled for outpatient rehabilitation every day. Now, she can walk an average of 2000-3000 steps a day, but she can’t walk very far and needs someone to accompany her when going out. She has come to realize even more how precious health is. The doctor said that children who develop the disease must have been vaccinated before the onset of the illness, but she hadn’t been vaccinated. After a series of tests… The doctor said her immune system was too strong and attacked her nerves, causing inflammation of three spinal fasciculations (L5-S1).
Life is truly unpredictable; no one can foresee what will happen next. We may not be able to completely prevent accidents, but we can choose to hold onto a small glimmer of hope and greet the next light. Let’s cherish what we have now. Let’s encourage each other!